Kabir Singh had never smoked in his life and had no history of cancer in his family. He ate healthy, did not drink, lifted weights regularly and enjoyed spending a low key easy life with his wife and daughter.
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So when he started having pain in his shoulder back in 2020, at 36 years of age, he assumed it was a gym injury. Little did he know that his shoulder X-ray would lead way to a series of scans and tests and the ultimate shocking diagnosis of Stage 4b Non Small Cell Lung Cancer.
Kabir put up a brave fight against the terrible disease. He was well into his second year of cancer treatment at Peter Mac Cancer Center in Melbourne and doing seemingly well until he was dealt with another blow - his cancer had spread to the leptomeningeal area, a condition called Leptomeningeal Disease that has poor prognosis and very limited treatment options. The progression caused Kabir to be kicked out of the clinical trial that he was on and he was no longer eligible for any trials in Australia.
He could no longer work and started to lose his balance and mobility. The only treatment option available to him now was double dose of a targeted therapy called Osimertinib. PBS only covers a single dose (80mg) of the medicine so his family has been privately funding the remaining 80mg dose since mid-2022. It comes at a huge cost of $8000 per month out of pocket. His family and oncologist have appealed multiple times to the pharmaceutical company for compassionate access to the medicine without success.
Kabir and his family have been using up their savings and superannuation to fund the treatment that is controlling the disease and keeping him alive. They want to give him the best possible chance. However, the expense is no longer sustainable for the young family. They have never been in a tough position like this where they had to ask for financial assistance and would appreciate any help that you could provide.