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Helping Zane West

Helping Zane West

Zane’s Collective fights DIPG

Zane is 8 years young and on Christmas Eve 2019, our world was shattered after learning that our loving, vibrant and energetic boy has a rare and aggressive brain tumour.

Like all boys Zane's age he loves playing any kind of sport, surfing and soccer to name a few, but most of all pranks on his little brother Saxon, only now the little prankster finds it hard to do the most simple of things, as simple as walking a straight line.

It breaks our hearts to see our little boy struggle as he does, along with the confusion from Saxon not quite knowing why or where his brother has gone.

As any parent would, we will go to the ends of the earth to try any option available to us. These funds will help us get Zane to America for treatment.

"Zanes story".

Leading into Christmas we noticed Zane was losing his balance and not able to do activities he would normally do with ease. We wondered if he was tired after a big year at school, but his symptoms began to rapidly escalate so we went straight to our GP. After assessing Zane, we were rushed to hospital to undergo a number of tests and subsequently delivered the news that no parent should ever have to hear... Zane had Diffuse Intrinsic Pontine Glioma (DIPG) an extremely rare and aggressive childhood Cancer. Which kills about 20 Australian children a year, and has an average survival of just 9 months from diagnosis.

DIPG almost exclusively attacks our youngest (children under 12) and most vulnerable, who should have their whole lives ahead of them and there is currently no cure. Shockingly, despite all the advances in Cancer treatments, DIPG treatment is the same as it was 40 years ago. Due to its location in the brain stem, surgery is not possible and there is little other than radiation, which is not overly successful.

We soon realised the reality of an incurable disease. We have two options; we sit & wait for the inevitable or we fight till the end. We decided the latter…

There are promising clinical trials overseas which are not yet available in Australia. So after much research & consideration we have decided on a trial at Memorial Sloan Kettering Cancer Centre in New York with Dr Mark Souweidane using a groundbreaking technique called, Convection-Enhanced Delivery (CED) of a therapeutic agent directly to the tumour. Zane will need to be there for 6-7 weeks. Now that Zane has finished his radiation therapy we have a tight window of opportunity during the “honeymooning period” before progression starts. Time is limited and we don't have a day to waste.

This tumour is savage... words cannot describe how heartbreaking it is to watch Zane decline in such a short time... From surfing and playing soccer with his younger brother to stumbling, slurring his speech and needing help doing the most simplest of things. We are determined to fight and give Zane every possible chance.

It won’t come cheap, so that is why we have created this patient treatment fund with two things in mind; firstly, to give Zane his best chance of survival and quality of life by accessing this clinical trial in New York. Secondly, we would like to donate any funds not required to improve Zane's prognosis and quality of life, to much needed research that will help other children and their families combat this horrible disease.

We can only achieve this with your help & kind donations, no matter how big or small. We are aiming for $450,000, which will cover Zane’s treatment & associated costs, travel & accomodation.

We are forever grateful for any contribution you can make. Thank you for your support.

Please follow Zane’s Collective on Facebook: Click Here

Anonymous
(17 days ago)
$30
Rachel Spencer
(19 days ago)
From my collective to yours Zane. Hopefully others will be inspired to raise money for you too.
$1,000
David & Lynne Slim
(19 days ago)
sending strength and best wishes
$100
Anonymous
(26 days ago)
$400
Anonymous
(26 days ago)
$2,000
Anonymous
(26 days ago)
$30
Suzy DunLany
(26 days ago)
$30
Anonymous
(26 days ago)
$50
Deb austin
(27 days ago)
Best wishes and big love to your little man xxxxx
$20
Anonymous
(27 days ago)
$50
Carolyn
(27 days ago)
Good luck
$30
Suzy & Gav Aked
(27 days ago)
$100
Anonymous
(27 days ago)
$30
FAAA staff member
(27 days ago)
Best wishes for Zane
$50
Anonymous
(27 days ago)
$20
Anonymous
(27 days ago)
$100
Anonymous
(27 days ago)
$30
Janine
(27 days ago)
Love and strength to you and your family
$50
Antonio Nucifora
(27 days ago)
Sending you healing love vibes.
$50
Anonymous
(27 days ago)
$20
Steven
(27 days ago)
thinking of you and your boy
$100
Jessica Gomes
(27 days ago)
$20
Anonymous
(27 days ago)
$60
Fran
(27 days ago)
Thinking of your family XX
$30
Erminia Jansz (Laino)
(27 days ago)
Erminia and family, my heart aches for you all- I hope Zane can get the treatment he needs 💙
$50
Barb
(27 days ago)
Keeping your boy in our prayers 🙏🏻
$100
Anonymous
(27 days ago)
$30
Anonymous
(28 days ago)
$50
Peter
(28 days ago)
Good luck!
$50
Leonie
(28 days ago)
So very sorry to hear of Zane's diagnosis with DIPG. Fingers crossed for New York xx
$50
Ringwood family (Meagan)
(30 days ago)
Sending our best wishes to you all
$50
Dris
(31 days ago)
Best wishes
$50
Kate & Richard Vines
(31 days ago)
With our very best wishes.
$250
Category: Patient
Tags: Zane; West; brain tumour; Diffuse Intrinsic Pontine Glioma; DIPG;,
$5,080
raised of $450,000 Goal
donations