In February 2016, my best friend Lejla Meduselac was diagnosed with Adrenal Gland Cancer. It started with her developing acne all over her face and shoulders and hair growth on her face. She started going really red and it looked like she got sunburned. She noticed something was wrong so she kept going to her local GP to try and get some answers. He got her to do a Cortisol 24 hr urine test and hormones blood test. The blood test came back with her having a huge amount of testosterone and in the urine test it showed there was way too much cortisol being produced. So the doctor decided to get Lejla to do an Ultrasound of her ovaries, thinking it's Polycystic Ovarian Syndrome (POCS). When they did the ultrasound they were able to see something abnormal coming from further above and therefore they got her to do a CT Scan straight away. Within 10 mins they were able to find the mass of 10.7 cm on the Adrenal Gland. She was referred straight to the hospital.
At the hospital at first they were not sure what they could do, but as the tumour was releasing way too much cortisol it was too dangerous to keep it in Lejla's body. So on 15th of March, Lejla had her Adrenal Gland and the tumour which ended up being 13.7 cm removed.
A few months later they did another CT and Pet Scan and it showed that they missed a bit that was heading to her kidney and in part of her Inferior Vena Cava (IVC). So she needed surgery again. They removed her kidney and part of her IVC.
Four months later they did a PET Scan and it showed all clear. But because her cancer was so aggressive they decided to put her on a Chemotherapy called Mitotane. It is a very potent chemotherapy that makes Lejla have diarrhoea, vomiting and tiredness quite a bit.
In February, she saw her doctors and it was time to do her 1 year review, which she did. She did a PET Scan that showed up with 10 mm lesion on her liver. This wasn't clear enough for her Doctor so he got her to do an ultrasound of her liver and they weren't able to see anything. So the doctor couldn't leave it at just that and got Lejla to do an MRI and results came back with her having cancer back on two places in her liver.
Now she is waiting to go in to the hospital and for them to organise another surgery and some sort of chemotherapy that could help it from spreading. Considering this cancer is rare we don't know what they will be able to find for her.
Lejla has two children, one 11 and one 8. Her daughter aged 11 has Cerebral Palsy, and is in a wheelchair. She also visits the hospital quite a bit and she has to undergo feet reconstruction very soon. With all the physio, speech and all other things that come with having a child with special needs, this just adds to the financial and emotional strain for Lejla is already experiencing.
This has to be the hardest part of her life and doing it all alone without the kids father, it is hard financially.
I am doing this to help her out.
Message from Lejla
I have begun my treatment sessions in Sydney. There is a lot of travelling involved and requires a trip from the Gold Coast to Sydney every four weeks. This also means that I must leave the children with my parents whilst in Sydney. Despite the constant travelling and time away from family, I am hopeful that the treatment will help improve my situation. I know I must continue to do everything I can to try and beat this disease. I am grateful that this treatment is available to me, and will be forever thankful to my parents who have given up so much of their time to ensure that I get the medial assistance I need. This is a positive step forward and I will remain hopeful.
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